Friday, November 1, 2024

9:00 AM - 9:30 AM

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Founded by a dedicated group of families set out to save their children's lives and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership (EBRP) has the ambitious goal of curing the life-threatening rare skin disease Epidermolysis Bullosa (EB) by 2030 and in the process pioneering an innovative model for curing disease. As the largest global nonprofit dedicated to curing EB, EBRP has made remarkable progress: raising over $60 million to fund more than 140 global scientific projects and companies, growing the clinical trial landscape from 2 to more than 40 clinical trials, and achieving the first two FDA approved treatments in 2023. Their award-winning venture philanthropy and business model has garnered leadership recognition from Harvard Business School, Yale University, MIT, Stanford University, Rolling Stone, and Forbes. Learn how EBRP's innovative model can scale to bring together the nonprofit, biotech, academic, and regulatory industries to put speed into treating and curing diseases.

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